At 25 weeks premature and weighing only one pound at birth, Loushay Davis has lived a life defined by resilience, faith, and determination. Today she is a healthcare advocate at both federal and state levels, a published model, and a motivational leader. In this interview, she shares her journey with epilepsy, the challenges she has faced, and the message she hopes to share with others.
Tell us about yourself
Hello, my name is Loushay. I am originally from Houston, Texas, born on February 21, 1995. Today, I serve as a healthcare advocate for both the federal government and the state level. I’m also a published model and motivational leader. One of my long-term goals is to gain dual citizenship with an African country and open a private healthcare facility to help individuals with disabilities like myself.
I love to travel - my most recent trip was to Ghana in February 2025. I also love to exercise and pray, which keeps me grounded.
Learn more: Can you exercise with epilepsy?
When did epilepsy start, and how has your treatment been?
Epilepsy became part of my life while I was in the Neonatal Intensive Care Unit as a newborn, due to my premature birth and underdevelopment. My experiences with doctors and treatment have not always been easy. I’ve only been able to tolerate one medication - Lamotrigine. Finding what worked for me was a long and difficult journey.
Learn about the 7 most common anti-seizure medications here.
How did your family support you, and how have you advocated for yourself?
My family was shocked and surprised when I was diagnosed, but my mother kept her faith high and did whatever she could to make sure I had a fighting chance. She has been by my side through every doctor’s visit, every treatment, and every emergency.
I’ve also had to advocate for myself many times. Some doctors and people are not always understanding when it comes to seizures and the side effects, especially those that affect your mental health. Speaking up has been essential to ensure I was heard and treated with respect.
Read more: 20 questions to ask your doctor about epilepsy
How has epilepsy shaped your life and what lessons have you learned?
Living with epilepsy has taught me to remain strong and to keep writing my story every single day. Waking up is a blessing, and I strive to be the best version of myself each day, keeping my faith high.
An unexpected positive has been the ability to help others with the same disability, and even those facing other health issues. My struggles have given me a purpose.
Why did you start EccentricQueenz and BlackJewel?
EccentricQueenz started as a space for women’s fashion. Today, I’ve expanded my work into BlackJewel, which I use for motivational purposes and speaking. Both are ways for me to empower others through style, strength, and self-expression.
What’s a common misconception about epilepsy, and advice for the newly diagnosed?
People often think epilepsy is just convulsions. They don’t realize that seizures can also be internal and invisible to the eye. There’s so much more to this condition than people understand.
Read more: 10 facts about epilepsy myths
My advice for anyone newly diagnosed is to just breathe, meditate, and pray. Don’t let this diagnosis discourage you from living your life to the fullest. Seek out care, keep your faith strong, and remember that you are not alone.
What message do you hope people take away?
I hope people understand that my life has not been easy these past 30 years, but I am living proof that you can overcome it. If I can do it, you can too. Don’t give up. Keep your head high, keep your faith strong, and know that everything will be okay.
Want to share your own epilepsy story? Message our team at contact@epsyhealth.com.
