User Stories

Read our user's personal journeys with epilepsy
November 8, 2021

Tiffany Kairos & Refractory Epilepsy

Meet Tiffany Kairos, an epilepsy advocate, blogger and the founder of The Epilepsy Network. Based in Ohio, she lives with refractory epilepsy.

October 18, 2021

Andrea & Nocturnal Seizures

Meet Andrea White from Southern Texas, she has been living with epilepsy for over 2 years and shares her journey on YouTube. Read Andrea’s story below.

March 7, 2022

Miles: Filmmaking & epilepsy

Meet filmmaker Miles Levin, who’s raising epilepsy awareness through film and his short film ‘Under the Lights’. Read his epilepsy story and experience with Epsy below.

August 2, 2021

Danny & tonic clonic seizures

Our team sat down with Epsy user Danny from South Carolina, who was diagnosed with epilepsy at 3 years old and experiences tonic clonic and absence seizures. Read his epilepsy story.

July 12, 2021

Military Veteran Nikki's epilepsy story

Meet Nikki from New York, a marine veteran, musician and a mental health & addiction recovery advocate with epilepsy.

July 12, 2021

Gavin & Intractable Epilepsy

Meet Lauren, a loving mother and caregiver to Gavin. Gavin is 9-years-old and has experienced intractable epilepsy since the age of 5.

May 24, 2021

Delaney & Focal Seizures

Meet 3-year-old epilepsy warrior Delaney and her mother Michelle. Based in Florida, Delaney now experiences focal-aware seizures. Read their family’s story below. 

April 22, 2021

Matt & Partial-Onset Frontal Lobe Seizures

Meet Matt, a marketing professional based in San Diego, he experiences partial-onset frontal lobe seizures. Read his full epilepsy story below.

March 10, 2021

Jhau’Zlynn & Tonic Clonic Seizures

Meet Jhau’Zlynn or JZ for short, a 30 year old from Arizona who experiences tonic clonic seizures and loves to play music. Read her epilepsy story below.

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