User Stories

Read our user's personal journeys with epilepsy
November 10, 2020

Amanda & Penelope’s DOOSE diagnosis

Meet Amanda and her heart-warming story of being a caregiver to Penelope, her 14 month old daughter, who was diagnosed with epilepsy at 7 months, read her full story here.

December 21, 2020

Tiffany & Absence Seizures

Meet Tiffany; a proud epilepsy advocate, who uses Epsy to log everything she needs to communicate with her doctor in future appointments.

February 23, 2021

Michael & Focal Aware Seizures

Meet Michael Lang, a husband and father with focal aware seizures. He uses Epsy to monitor his medication compliance and seizure activity, Epsy has helped him discover new triggers.

May 4, 2021

Anna & Temporal Lobe Epilepsy

Meet Anna, a Harry-Potter-loving music-fanatic who uses Epsy to put her mind at ease by keeping track of her medication.

March 5, 2021

Megan & Juvenile Myoclonic Epilepsy

Say hello to Megan Mejia or @awaywithepilepsy on Instagram, a 22 year old college student living in Las Vegas with Juvenile Myoclonic Epilepsy.

October 26, 2020

Lauren (Kelsey’s Mum) & Epilepsy

Meet Lauren, Kelsey’s Mum. She tells us the story of Kelsey’s epilepsy, her message to other caregivers is to; keep going, keep living, keep fighting.

October 26, 2020

Kelsey & Refractory Epilepsy

Meet Kelsey, a 17 year old from Atlamonte Springs, Florida. She lives with refractory epilepsy. Her message to everyone living with epilepsy is to keep hope and be positive.

October 26, 2020

Darlene “Epilepsy is only a piece of the puzzle”

Meet Darlene, she has never let her Epilepsy define her. She deals with her condition with laughter and resilience. Read her story at Epsy.

October 26, 2020

Toni-Ann & Kelly-Jane - A Mother’s story of Epilepsy

Meet mother & daughter duo Toni-Ann and Kelly-Jane. Kelly-Jane has idiopathic generalized epilepsy. Read Toni-Ann's story of epilepsy as a mother.

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